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Caelyn was born 5lb 9oz and 17.25 inched long. We later found out that she has a genetic syndrome that her daddy and I carry known as SLOS, short for Smith Lemli Opitz Syndrome. My babies were not able to convert 7DHC to cholesterol because they lack the enzyme that is does that job. To learn more about SLOS and how you can help go to www.smithlemiopitz.org. Little Bella Nicolette was only 12 weeks gestation when her heart stopped beating. We were so devasted to hear she also had SLOS, we love her and miss her terribly.
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